jenny61_99
Premium Platinum
Thank you and I’m sorry about your mum. She did very well, but as you say, they are so stoic despite the pain they must be in. My sis has had a relatively good quality of life although the rider here is the level of pain. Her femurs are rodded in both legs to make them stronger. And she has mulriple fractures she just lives with. She wears a morphine patch and will often need a strong pain killer chaser if she’s had one of those days. Most days she’s thrilled to have survived (and got a chance to share in her four grand babies lives in the last 7 years) but I know there are times when she has had enough. When she was diagnosed, the expected survival rate was two years. The transplant (which was horrendous) was supposed to give her another 1-2. I can’t tell you how grateful I am to have had her for 13 more years (and counting).Amazing story Jenny and my thoughts with your family. 17 years is extraordinary - what an amazing survivor she is and I hope she has had a decent quality of life.
My Mum passed away a few years ago with MM. You are said to 'die with it' rather than 'because of it' her Dr told us but its a horrid thing basically a cancer of the bones where they become so brittle they fracture and she ended up being bed bound in the last couple of years of life - she never once complained even with horrendous pain. My Mum (living in Adelaide) was told she was actually one of the longest survivors with MM having being diagnosed 7 years before her passing (where 'normal' time to survive is 3-5 years from memory)